About Me

Hi, my name is Melissa. Welcome to my blog site.

I have created this site to share my personal discoveries for natural healing for Endometriosis and hopefully help you to find alternative methods of healing. I want to open your eyes to the true potential of being pain free and eventually Endo free. I am 90% pain free since writing this, with only minimal pain at “that time of the month”.

I have been a sufferer of Endometriosis for over 15years and felt compelled to write my findings down in this blog. When I started out on my road to recovery, I had no idea who to trust and what methods would work. I was keen to try everything and anything to make the pain and long-term prospects of having a hysterectomy go away. My endometriosis was a stage 4, which basically meant the endo had found it’s way right up into the fallopian tubes, reducing my chances of babies dramatically! My first operation was at 19years of age….

My struggle began and the techniques used to “keep the condition under control” were often worse for me. I was given all sorts of hormonal treatments,  7 operations and countless different drugs and medicines to help cure the pain and side-effects I was feeling. Most of them didn’t work. I landed up with more agony from the side-effects than actually feeling better.

 

 

I had little left to try and with hospital bills mounting, I looked at alternative methods of healing. Luckily I have discovered Tradtional Chinese Medicine, Homeopathy and various other natural methods which combined together have allowed me to reduce my symptoms and pain. My goal is to be Endo free and CURE Endometriosis completely.

I have written my full life story with Endo for you, if you scroll down a little further, you can read the whole thing :)

I would like others to join me on this quest and show other woman with Endometriosis that Curing Endometriosis is possible! This blog is here to do that! If you have lost hope of finding hope with finding a cure, I hope this site opens your eyes to a different method of healing.

There are so many of us out there with Endo and many of us who have chosen to use alternative methods to deal with Endo. Lets share it all so others can benefit and save themselves years of pain and horrible side-effects.

I have learnt of many cases of Endometriosis simply by researching more about the condition and chatting to others who also have the condition. By sharing our knowledge we can all help eachother.

This is me and my partner James. We are currently living in New Zealand. He has supported me through many tough times and situations where I believe most men would have already left. It is hard to be supportive when one cannot see the pain or understand the strange emotional extremes that go on inside.

James is also a chef, which makes it easy for me to share some great recipe ideas on this site! I can just mention a health food I want to eat and he thinks of a recipe we can make with it!

Feel free to share your story with others by submitting a comment on one of my blog entries or on facebook or twitter.

If you would like to contact me for anything, you can do so on one of the following methods:

 

Email: melissa @ cureendometriosis.com (no gaps)
Skype Username: remotefishes

 

Best of health,

 

 

 

 

 

 

My full story with Endometriosis

This is a long one so make yourself a cuppa and maybe print it off for easier reading.

I have had Endometriosis for most of my adult life. I was born in South-Africa to German parents and lived in Johannesburg until I was 21.

My journey with Endometriosis began when I was only 16years of age. I had started my period within a normal range of about 12years old and had experienced period pain which gradually had gotten worse. Naturally, I didn’t think anything of it and even when I visited the Gynaecologist he simply indicated that it was okay to have period pain. I was not really aware that I had Endometriosis until I reached the age of 19.

When I was 16, I thought I had found the love of m life! He was an older boy of about 19 and I was so in love with him. He treated me well and I thought we were going to get married and have children together. I was very young and wanted to wait before I jumped into having sex with him and so we fooled around a fair bit but I could never quite cross that line. It was just scary to me and perhaps I had been warned by my mother not to have sex too early. Well, it was a year after we had met and he was going away with his friends on holiday. It was the first 2weeks we had been apart since we met. When he returned, he told me there was something he had to tell me. I remember meeting in a shopping centre over ice-cream. It was just such a horrible experience in my young mind….. He broke up with me and told me that he had, had sex with someone else while he was away on holiday. I was so heartbroken, I couldn’t control myself. I cried all the way home and then when he dropped me off, I just broke down in the driveway of our house and cried for hours. It had impacted me in a huge way and I became really angry. I was angry at myself for not sleeping with him and I was angry with men for only wanting me for sex and that I was not enough.

For the next 10years I resisted men and didn’t allow myself to really love them or get close to them. The memory of that night stuck with me and though I have only recently been able to reflect on this experience, I now realise that it was this event that created many of the psychological and emotional sides of Endometriosis.

After about 2years after my break-up, I developed a bladder infection. We were away on holiday in South-Africa’s Kruger National Park. It was incredibly painful and I could barely go to the toilet without screaming in pain. The drive back to Johannesburg was 5hrs and I remember it being the most agonising experience of my life. When we got home, I had a belly that was swollen like I was 3months pregnant and the pain was so bad, I could barely walk. I went straight to the doctor.

The doctor gave me a dose of anti-biotic tablets for my bladder infection, which slowly reduced the pain and discomfort of having stinging pee and a constant need to go to the toilet. Unfortunately, the pain on my left side did not go away. It was this dull ache that just lingered every day. It wasn’t severe but it was permanently there. I went back to the doctors and he said he would check for digestive issues. They performed an ultrasound and scan and took samples for analysis. They didn’t find anything conclusive, so they simply put it down to Irritable Bowel Syndrome. The doctor told me to increase my fibre in my diet and eat a more rounded diet. I had always eaten fairly well growing up but since being a teenager, I had started eating junk food quite regularly and drinking a fair bit. I cut out on junk food and began eating well again and reduced the partying and drinking. It helped a little but the pain was still there.

I remember lying in a bath, while visiting a friend and looking down on my body and somehow knowing that it was something to do with my “woman’s bits”. I had this horrible feeling come over me and I remember sitting in the bath and crying. I remember thinking; I am not going to be able to have children. I am not sure how I knew it was my uterus that was at fault and how it dawned on me that it was Gynaecological but somehow I just knew.

The next day, I booked in to see my Gynaecologist.  I have spent the last  few years, coping with IBS??? Sure…. and eating better and trying to just cope with the pain. The doctors had no answers and no scans could reveal anything. I had this constant dull ache, which got worse with my period and yet, no-one seemed to have any answers.

So, off I went to the Gynaecologist. He was a Greek guy, I remember that and I remember him saying that the scan could still not reveal anything and that I would need to go for an operation. I was 19. Scary thought! He told me that they would simply go in and have a look and see what was going on. Well, they did look and then they decided to remove the scarring and cysts while they were in there. I thought this was it. I really did. I thought that all I needed was the operation and that then all the bad stuff would be taken out and never come back. It was like taking out my appendix or something. Well, nothing could be further from the truth…..

He decided to put me on Danazol. I was going travelling with my friend to Australia and he thought this would be a safer option for me to try. The dose was daily and it opened up possibility of side-effects like a deeper voice, acne and headaches. I felt like I didn’t have a choice in the matter and thought, “well he is a doctor, he should know best”. Well, I travelled through Australia for 7months and during that time, I experienced all sorts of pain and side-effects. I was also continuously spotting. I didn’t stop bleeding for the entire time. So, when I eventually got back, the Endometriosis had spread all over again. Yip, you guessed it another operation……

This time, I decided to go to a specialist. He was a Gynaecologist that specialised in Endometriosis. 80% of his clients had the condition and he had managed to get most of them pregnant, which was deemed a successful outcome for woman with Endometriosis. I remember going to him and him saying that all I needed to do was get pregnant and then all my problems would go away. I was single and very young and the idea of children had barely entered my mind. He said I should aim to fall pregnant by the time I reached 34. Ironically, I am 34 as I am writing this.

Anyway, so he set-up a time for another operation, to remove the scar tissue and cysts. He said, he was a specialist in this area and that most Gynaecologists were not able to see the scarring that easily. Often these cysts were not noticed and left and they would then get worse. I totally trusted him and counted myself lucky to have finally found someone who I thought knew what they were talking about. I believed him and everything he said and my relationship with him as a doctor became ingrained. After the first operation, he put me on Syndol, which is a nasal spray containing stuff that stops your pituitary glands from producing hormones. It was fabulous and it was the first time since I was 16 that I had experienced absolutely no pain. I thought he was a miracle doctor.

Then the 6months were up and I remember having a discussion of what my options were from there on in. He said the Syndol would be bad for my bones and that I couldn’t keep taking it. I loved Syndol and remember begging him to let me have more. I said I didn’t care about my bones, I was that desperate. The pain came back and much much worse than before.

Another operation.

We then tried a whole series of drugs and hormonal treatments. There are so many I honestly cannot remember them all. I remember that most of them just created spotting or side-effects like migraines and nausea which was too hard to cope with.

Finally, we settled on the contraceptive pill. It was a mini pill and I was to take it continuously and not have my period. I didn’t like the idea of this at first but then as the pain reduced and I was finally able to lead a normal life, I had restored faith in my doctor.

I had, had 5 operations in between and had tried everything under the sun to get rid of the pain. I was still having small bursts of pain when my period was supposed to happen but it was so nominal that I could quite easily carry on with life and not even know I had Endometriosis.

I moved to London and enjoyed a fantastic social life, which involved some heavy drinking, eating badly and really not looking after me all that well. Though I was on the pill, still on a continuous basis, I started to experience pain again. It was very mild and only really noticeable when I was having sex but somehow I didn’t feel that it was going away. I honestly believed this method of taking the pill continuously would make my endometriosis GO AWAY. How wrong was I?

I decided on my own steam to have another operation. Mainly to put my mind at rest as I tended to worry about it being Endometriosis and I didn’t want it spreading any further than it had been before. Well, the operation was performed by a doctor over in London and I received fantastic private health cover. They operated and found NOTHING….. No sign of Endometriosis. I couldn’t work it out. Why was I having pain again? Was there scarring that was causing it?

I decided to go back to South-Africa after living in London for 2years and get my “specialist” to perform another operation to make sure. After all he would know better how to find the Endometriosis, since it was his specialist. Well, he went in and once again found NOTHING. The Endometriosis was gone or so he said. He sowed me back up and that was that. Right?

Well, no Endometriosis does not go away from the pill or any hormonal treatments. It just diminishes the scarring and cysts and it eventually comes back.

I moved to Australia in 2003. I loved it. Australia is such a beautiful country with such warm and welcoming people. I remember taking a role as a coffee shop manager. It was my first role and I thought since I no longer had Endometriosis I could run a coffee shop quite well. My “specialist” gynaecologist had said to me one day that I should not attempt to take a role in hospitality, that it was too hard on my body and that I should give up my dreams to own my own coffee shop. I remember being completely thrown and that my whole life’s purpose had somehow been taken away from me because of silly Endo. Since, I now no longer had Endo, I thought FANTASTIC….. I can start my dream of owning my own coffee shop.

The pain came back. Slowly at first as I remember having tried to lose weight I was on a fairly good eating regiment. But, it did and I remember thinking. There is no way I am having another operation. The last one just was too much. It was not an option. I was stuck then. What could I do? Since, natural therapy and Traditional Chinese Medicine is much more publicised and commonly used in Australia, I thought….. Well I shall give this a try and if it doesn’t work within 6 months I will have to go for another operation. I went to a naturopath first. She put me on a very strict diet. It was incredibly effective. I wasn’t allowed chocolate or dairy, gluten or meat but I felt light and had no bloating or pain. It was brilliant. The pain was still there though, at certain times of the month and though I ate well, this didn’t seem to subside.

I explored my inner thoughts.

By this stage, I was desperate and I joined a group which claimed to be able to get rid of negative thoughts and diseases through releasing negative emotions. I was at a point where all the other methods had not worked and I was willing to try anything. It was a fantastic spiritual journey and taught me allot about myself and the anger and resentment I held towards men and life in general. I learnt to let things go. I learnt to let go much of my anger towards my mother. I learnt to let go my constant need to be perfect and to do better. It was hard to accept these things of myself and recognise that I was being destructive on myself and my body. It was affecting me emotionally which was illustrated in my bodies pains. I felt better, heaps better!

I remember having a fantastic day playing tennis in the Domain of Melbourne. Having my first day of my period and having NO PAIN. I was playing tennis! Running around with my period and didn’t experience anything. It was amazing! I had been drug free – not even headache tablets – for 6months and was eating really well. The combination of emotional healing and physical healing had worked brilliantly!

I decided to ensure my healing was complete and visited a Traditional Chinese Doctor. It was horrible tasting stuff but my goal was to be completely Endometriosis FREE.

I was Endometriosis FREE for 4years! Fabulous! No pain and no side-effects for 4years!

I then met James, the love of my life. It was 2006. I had not been on the pill for 4years and since we were dating, I thought I would go back on the contraceptive pill. We were so in love and I remember the joys of being able to have sex without any pain. It was so wonderful! Well, I didn’t understand why I was taking medicines and what they were actually trying to achieve. I went to Chinese Doctors and did what they said and when it worked, I stopped and went back to my old ways. I went to a naturopath and listened to their advice on what to eat and then when it worked, I stopped and so forth and so on. I didn’t understand what any doctor was doing with my body and how they were trying to heal my body. I simply listened to their advice and then followed it. This was fine, as long as I continued on their instructed path. Unfortunately, I didn’t and went back on the pill, not understanding what it would do to my body.

It was fine for 2years. No pain and no side-effects but then…… they came in one big mound of side-effects and problems. The pain started again slowly and then the side-effects. High emotions and nausea were the first signals. I remember having thoughts that Endo had come back but that I didn’t want to acknowledge it. I didn’t want to have to go for another operation. I went to a Gynaecologist. He did the usual. Well, we cannot tell if it is Endometriosis from the scans, so we will have to perform a laparoscopy. I just cringed and decided to simply improve my eating and try and exercise more. Lucky for me, James is a chef and made me so many delicious and healthy meals! This was fine for a while.

James and I then landed a fantastic life changing role running a lodge in the Daintree of Australia. We ran a 4star lodge right in the middle of a rainforest! It was amazing! I absolutely loved the role and we worked incredibly hard to get it up to scratch. It was fairly run down when we got there and our goal was to bring it back to life. Which we did! The problem was, it grew really quickly! When we go there, there was only 10% occupancy and it gave us plenty of time to do other things. As the second year approached, we were loaded with bookings and it was only me and James running the lodge. There were 7 rooms, a restaurant and I had to do all the administration as well. This meant we were working 14hour days, 7 days a week.

My body started to show signs of breakdown. First, it was just getting tired alot. Then it was daily headaches. Then progressively it got worse and I had diarrea almost weekly. My headaches were so bad, I was taking headache tablets almost twice a day. My body was telling me to SLOW DOWN. I couldn’t. We were too busy to just stop and so I pushed myself for 7months of feeling bad, no rest and little care on my body. To cope I would often just drink the pain away. This of course made it worse! It was time to leave…….

So, we did and now James and I are living in New Zealand.

I am back on my path of natural recovery, but most importantly, I am learning about how the body works and why my previous attempts of healing were successful or not. I decided to post the information on this blog so everyone in the world can discover WHY we have the problems that we do and how NATURAL remedies actually work at healing the body. I want woman to understand why the contraceptive pill is so bad for the body and why any hormonal treatments don’t actually work at healing Endometriosis.

We can heal ourselves through natural remedies. We just need to understand how the body functions and how its natural balance can be repaired.

Thank you for reading my story. I hope I can help you make better choices for your body through the information on my blog.

88 Responses to “About Me”

  1. lisaisz January 29, 2012 at 7:00 pm #

    Hi Melissa,
    Jus quick note to.respond to taking fabrovan .
    A few years ago, before the FDA info was on the website, I called to talk to the doctor that makes the product and has the website. I spoke to him About the FDA and the soy in the pill.å
    He told me it was extremely difficult to work with the FDA because of money.
    He says he remains discreet so he doesn’t draw attention since the government wants to
    Control the entire natural drug industry, ( this i know to be fact because of conversations with halistic healers i’ve had conversations with). He isnt being dishonest and if you call him, he will gladly talk to you for as long as you need to and explain everything. Also he explained the soy extract which is organic and not genetically modified and is different from the processed soy products we are meant to stay away from. If you read a bit about natural organic soybeans, they actually help balance the hormonal system. I have been taking fibrovan for 1 1/2 .months now and so far I have had relief from my bladder and i actually have had my stomach shrink. I no longer feel the heaviness and bloating. The fibroids begin to shrink only in the 3rd month,not before. Some of the responses I read were woman claiming they felt no shrinkage after taking fibrovan for 1 month. That’s probably because they haven’t taken it long enough. Also I am an organic vegan. I’m thinking that if woman eat animal and fish loaded with hormones and are taking fibrovan, maybe they are being counter productive? Just some things to think about.

    • Melissa January 29, 2012 at 7:25 pm #

      Hi Lisa,
      That is very interesting and thanks for sharing your thoughts and experiences. The downside with soy, regardless of it’s source is the high phytoestrogen content it has. This is fine for a short time and might offer some relief to women with big cysts but the danger is when that balance topples the other way. The animal fats will have an effect on the Xenoestrogen content in the body and create more Oestrogen imbalance. Check out this article I did on Phytoestrogens which might explain things a little better. http://www.cureendometriosis.com/what-you-need-to-know-about-taking-red-clover-for-endometriosis/
      I am hesitant on phytoestrogens in general. Not sure why but maybe it works for some girls. Hope it continues to help you :)

  2. tanaya January 18, 2012 at 3:00 am #

    hi my name is tanaya im 23 years old and have been suffering endo since 14years old. kast year at 22 i had 4 surgeries for endo including a tumor removed. since the tumor was removed in october 2011 ive had 15 trips by ambulance in severe pain and many appointments with my specialist and gp. they said theres nothing more they can do for me anymore. im currently taking 5 endones a day but still in agony. i have asked for a hestorectomy to cure the severity of my endo. but i have no i dear what else to do now im always in agony

    • Melissa January 18, 2012 at 10:23 am #

      Hi Tanaya. I am so sorry to hear of your struggles and that you are in so much pain. Unfortunately, a hysterectomy is not always the answer either.
      There is heaps you can do for your body! I promise. Start with what you are eating and focus on detoxifying your body of all the toxins that are in your liver and cells. I have written a few articles that might help:
      http://www.cureendometriosis.com/mels-4-endometriosis-treatment-tips/
      http://www.cureendometriosis.com/5-steps-100-natural-path-endometriosis/
      There is a way forward…..you just have to take a jump over to the other side of health – natural healing :)
      Big hugs Tanaya and I hope you can find some resolve in the answers on my blog.
      Melissa

  3. julia December 23, 2011 at 9:59 pm #

    dear melissa,
    i was diagnosed very recently, and am recovering from my first (hopefully only) laproscopic procedure. i found your website yesterday when i was searching for ‘alternative’ ways to heal, and perhaps keep the endo and its symptoms at bay. i just want to thank you for such a wonderful resource that you have provided- pro-active methods for us to try and do something about it, and not just sit back and hope the doctors take care of it. since i started having discomfort, the only physical activity i really felt like doing was yoga- and because of the yoga, i started to be more mindful of eating foods that detox and provide more nutrients… and now, after finding your website, im encouraged to keep going, and to make additional changes to my diet. one thing i found interesting was the connection between endo and hot-cold sensitivities. i only recently started getting chillblains, and struggle with regulating my body temperature. it is truly as though there may be some sort of imbalance in my system that needs working out.
    i will continue to read your articles and the comments that other readers have posted. thank you for your inspiration!
    happy holidays,
    julia

  4. Michelle November 26, 2011 at 1:25 pm #

    Hi Melissa

    Ironically, I have stumbled across your blog as I am deciding whether to go off the pill.. however I know that there are no accidents and clearly i was meant to find it…

    I am 39 (a kiwi living in oz) and have had 2 operations for endometriosis, one in NZ in 2004 and one in Aus in 2008. The second time it presented differently and was more like IBS however it was endo again…

    I’ve been on the pill since I was 19 and after the last operation, my specialist told me to only have my period every 3 months. I have been pain free however i’m conscious that my hormones are out of whack.

    I’m about to see Lily liu who is meant to be famous for dealing with endo using Chinese traditional medicine…

    It suddenly dawned on me that i’ve been on the pill the whole time and the endo still came back… i have changed my life dramatically in the last 2 years to reduce the high stress, lack of sleep etc and believe this has assisted my body to heal itself.

    Thanks for your wonderful blog, its helped cement my decision that its time to come off the pill and finalise the healing through natural therapies…

    To more people finding a life without endo

    • Michelle November 26, 2011 at 1:28 pm #

      p.s. as an NLP Life Coach, I totally support your statements on eliminating negative emotions such as anger, fear and sadness, its a huge tool in healing your body…

    • Melissa November 26, 2011 at 5:27 pm #

      Hi Michelle and welcome to my blog :) Nice to have a Kiwi follower! I have to say that chinese medicine would still have to be my favourite choice for endo. Finding a good practitioner is half the struggle – so glad you found Lily Liu. Unfortunately I think the pill only subdues endo and when we go off it, it fights back harder….making us just want to go back on it – catch 22 really. Glad you have made the decision though and I hope you find natural healing :)

    • ivana January 13, 2012 at 9:43 pm #

      Hi Melissa & all, I have endo, have had two operations and have recently been told that it is back. I have just had a failed IVF treatement and I am like all of you looking to find a cure for endo and hopefully get and stay pregnant. I am ready to start looking into traditional chinese medicine, can anyone recommend a place in Melbourne area, lots of them come up when I search but would love to have a recommedation. Thanks
      Ivana

    • Melissa January 14, 2012 at 1:45 pm #

      Hi Ivana,

      I found one in Brighton, or near there somewhere that was brilliant. He is a western doctor, trained in Chinese Medicine and it is great cos he understands you more :)
      I used to live in Elwood, so it is near there – Bay street I think. Sorry, can’t remember his name but if you drive down there, you will probably find him.
      Chinese Medicine is fabulous! :)

  5. soraya October 9, 2011 at 3:48 pm #

    I’m 19 and I am quite concerned and anxious because I seem to have so many of the symptoms.
    I’m going to the doctor this week to discuss my symptoms and do a blood test.I’m not sure whether to bring up the idea of endo with the doctor or not.
    I’m quite scared because my general health just doesn’t feel right, even though I eat well and avoid nasty foods. It is nice to know that all this information is here and this website is here if it comes to that, but the information is also generally good to know for everyday wellness and trating your body right.Thankyou for the information.

    • Melissa October 10, 2011 at 8:01 pm #

      Hi Soraya, It is my pleasure and I am glad you can feel some relief in knowing it is here, if you need it. Health is funny. On some level, knowing what we have makes us feel better but the reality is, the process for healing is the same: good food, low stress and exercise. It isn’t complicated but sometimes it is hard to take responsibility :)

  6. lana October 3, 2011 at 11:01 pm #

    It is really nice to see you have a partner, he looks like he is supportive and you look happy together. I think it is really difficult to find that today, even more so with a condition like Endometriosis, it forces us to have to be so personal and honest. Glad for you that you have found that. It is hard when you are single to have faith that we will find someone who will understand us and be by our side.

    Love and peace
    Lana

    • Melissa October 6, 2011 at 9:49 pm #

      Hi Lana. I know when I was single it seemed like the most impossible task but when it happens it all seems so easy and simple. I went online to find James – it worked wonders! Never give up and believe you can find someone and you will. You deserve it after all :)

  7. Danielle Solazzo September 17, 2011 at 12:20 am #

    Mel-You are beautiful…check out this site…http://crazysexylife.com/
    <3

    • Melissa September 17, 2011 at 6:48 pm #

      Thanks Danielle :) It is a great site. I will have to check out the books!

  8. Danielle Solazzo September 16, 2011 at 12:49 am #

    Mel,
    I have been following you for quite some time and you have changed my life. I have been suffering for 10 years and you are such an inspiration. Thank you.

  9. Kimberley September 5, 2011 at 3:14 am #

    Hi Melissa, do you have any information on miscarriage rates. I’m currently 5 weeks pregnant and keep hearing that we have a higher risk of miscarriage. I even saw an article that suggested 1 in 2 women with endometriosis will miscarry? As you can probably guess, I’m petrified! Do you have a previous article or knowledge of a good article regarding this matter.

    Thanks heaps
    Kimberley

    • Melissa September 7, 2011 at 6:08 pm #

      Hi Kimberley. No sorry I don’t have any on hand but perhaps it is not a good way to think about things. Maybe you are better off giving yourself the best way of having a successful pregnancy. Get onto some Raspberry Leaf Tea and eat heaps of fruits and vegetables. Drink a home-made juice every morning and take up walking or Yoga for pregnant ladies. Worrying and creating a miscarriage in yoru mind is just going to create stress and no matter what the statistics say, you don’t have to be one of them :)

    • Lisa September 30, 2011 at 5:19 pm #

      Hi Kimberley, congratulations! When I was pregnant with my first son at 35 my doctor made sure that my progesterone levels were going up. She did this with a simple blood test. She even called me screaming the exciting news! I never was told that I had a higher chance of miscarry only an ectopic pregnancy. I made a smoothies every morning with almond milk,flaxseed oil plain yogurt and fruit. It was so yummy. I had my second child 3 years later. They were both surprises and what blessings. I have done a lot alternative medicine to coup with my endo. Prenatal messages really help. I agree with Melissa try and do things that don’t stress you. Many blessing to you and your baby.

  10. Claudia August 19, 2011 at 8:53 am #

    Hi Melissa,
    What a great blog! I’m fed up with endometriosis. I have just had a laparascopy and confirmed I had a chocolate cyst and all sorts of adhesions/endo on my bladder and liver. I was hoping to find out if you have gone through the journey of trying to conceive? I am sorry if I bring up something painful for you. I want to find out how this will impact my life in this way.

    Thanks & I look forward to reading more on your blog..so much info!

    • Melissa August 19, 2011 at 11:00 pm #

      Hi Claudia,
      I am glad it has given you so much :)
      No, I can’t say I have tried to conceive if it is something I really want, whether that is intentional or not. I think I will know when I am ready and my body is ready and then it will happen. I can’t say I have a massive urge to have a baby right now though. You can choose how anything impacts on your life – good or bad :) That choice is always yours.

  11. melissa July 23, 2011 at 5:19 am #

    i think i have your condition but no doctor has been able to confirm it.

  12. Steph May 6, 2011 at 6:24 am #

    Hey,
    Thanks for all the advice. :-)
    If you’re ‘trying to conceive’ are you supposed to stop Evening Primrose Oil at
    ovulation too?.. Think I’ve read that somewhere.
    I’ve been putting the Aloe Vera in my pineapple juice and can’t even taste it.

    Steph x

    • Melissa May 7, 2011 at 10:52 am #

      Hi Steph. Yip that is correct. From Menstruation to ovulation is best. Here is a specific article for fertility and evening primrose oil for you:
      http://www.babyhopes.com/articles/epo.html
      I don’t find the Aloe bad at all. Spirulina is the one I struggle with – need heaps of other fruit and veg in my juice with that one! It also turns everything kinda karki colored!
      Happy baby creating :)

  13. Steph April 30, 2011 at 4:41 am #

    Thanks for your reply Mel,
    I’ve started writing down what I’m eating, so I can be more aware. How much Maca would you recommend taking?… I’ve got some tablets, is that ok or should it be the powder?.. I’m off out tomorrow to buy some Aloe Vera and Spirulina. How do you take these? Are they ok pure, or do I need to mix them in with something?…
    I’ve added in a probiotic acidophillus supplement recently to improve digestion. I’m also trying to eat porridge (oats) for breakfast and top with Goji berries, wheatgerm and mixed seeds.
    You’re probably right about the emotional issues. I see a reflexologist once a week and she’s a trained counsellor. I feel better talking to her, but not really sure how to leave everything behind and move on.
    Thanks,
    Steph x

    • Melissa April 30, 2011 at 11:12 am #

      Hi Steph. I found the Maca really hard to take as a powder. It tastes just nasty :(
      Aloe Vera is quite easy to drink – might take a little getting used to but I found it fine, even on its own. Spirulina can be a little challenging too. I usually mix it in with my juice in the morning but I also got the tablets incase I don’t want a spirulina flavoured juice :)
      I found focusing on ones emotions really hard. We often don’t even know what the issues are. I found Emotional Freedom Technique the best way to really let things leave your body permanently.
      http://www.cureendometriosis.com/i-feel-amazing-you-have-to-try-the-emotional-freedom-technique/
      Congrats on taking those first steps to healing :)

    • Steph May 1, 2011 at 9:24 pm #

      Hi,
      I’ll have a look at that Emotional Freedom Technique and see if it helps.
      I bought some Aloe Vera today and will mix it in with my juice first I think. I’ve also got some Maca 500mg tablets. How many would you recommend I take each day?…
      I’ve heard you recommend Evening Primrose Oil too. How much of that should I try each day?… Spirulina is on it’s way, but I think I’ll be mixing that in with things!
      One last question (!) you suggested we cut out sugar, does this mean all sugar including the sugar found in fruits and fruit juices?…..

      Thanks for helping me to heal!
      Steph x

    • Melissa May 2, 2011 at 6:40 pm #

      Hey Steph. I would start with a small dose of Aloe Vera as it does take some of us a little to adapt to. Just 30ml once a day to start. Maca I would probably have 4 tablets a day initially but only take it on days 1-14 of our cycle. Evening Primrose, 2 tablets a day should do :) Depends on your level of soreness.
      Sugar …. fruit and fruit juices is okay. Just avoid having them at night and after food. Ideally have them before food. Don’t overdo them and always put veggies in your juice – carrot, cabbage, beetroot. Makes them go down easy too :)

  14. Steph April 25, 2011 at 11:14 pm #

    Hi Melissa,
    It’s so amazing to read all the articles on your website and your advice. In the UK, we usually get told to get pregnant or go on hormone treatments to cure endometriosis!

    I was diagnosed last July via a laparoscopy and had laser surgery to remove it. We’d been trying to conceive for 8 months then. Within 5 days my usual endo pains were back. We were told there was no reason we couldn’t conceive, but have had no luck so far. I’ve just had another laparoscopy last week and had excision surgery this time. (they cut it out) I was told it’s aggressive endo now. I’m supposed to be feeling hopeful now that we can get pregnant and stop my endo coming back quickly, but I seem to be struggling to think positively. I’m seeing a reflexologist and having auricular acupuncture twice a week, but am seeing no benefits so far. She has me on chinese herbs to improve my kidney function. I totally believe that she knows what she’s doing, but my body won’t respond! I think maybe I should have a radical diet re-think and see if I can feel better that way. What foods would you suggest I definitely SHOULDN’T be eating, and what foods/drinks should I definitely add?…
    Thank you so much for all your articles and positive thinking

    • Melissa April 26, 2011 at 9:32 am #

      Hi Steph,
      It is possible that your body is resisting healing for one of two reasons. Either you are emotionally still holding onto something that you need to get rid of or your body is not ready to absorb the nutrients in the body. If your digestion is not good, maybe consider getting onto some Slippery Elm powder and Aloe Vera Juice. Your diet is MASSIVE in terms of healing. I am going to be launching a course called “Eating with Mel” in the next few weeks which will cover exactly what to eat and when. In the meantime, stick to the golden rules: avoid gluten, dairy, meat. Eat fruit, veg, nuts, seeds and as many superfoods as you can. I would recommend Maca Root, Aloe Vera Juice and Goji Berries or any kind of berry – blueberries, blackberries any of those are really good.
      It is my pleasure :)

  15. Melissa April 7, 2011 at 2:55 pm #

    Hi Melissa,
    I am Melissa as well! I found your site through a chat forum and I am so happy I did. I am 25 years old and have been dealing with severe menstrual problems since I started my period when I was 12. For a short amount of time I was on birth control and the symptoms lessened but werent exactly..great. At that point Endo wasnt even in my mind because I was 18 and didnt think anything of it. About 2 years ago now I came off of my birth control and things have just gotten AWFUL since then. I have had serious gastrointestinal problems and pain. I have had a colonoscopy, upper endectomy, small bowel follow through, 2 CAT Scans and 4 internal ultrasounds and all of that looked great so my next step was to consider Endo. It has been so frustrating and scary not to have answers. However, today was actually the day of my first laparscopic surgery, Im surprised I am up and awake lol. They DID find some endometriosis but I wont get many details until my post-op appointment. I just wanted to let you know that reading your story has made me feel so much better. I have serious fears about not being able to conceive and pretty much just how to live normally. Its nice to hear someones REAL story and it makes me feel not so alone. I will definitely be visiting often!

    • Melissa April 8, 2011 at 4:24 pm #

      Hi my fellow Melissa Endo friend. It sounds like things have been pretty nasty the last while. It can only get better from here on it, so hang in there :)
      Whatever it is, the same natural solutions apply, look after your body and give it the healing tools to heal itself. You will be fine :)
      Look forward to your future visits!

  16. Winifred April 3, 2011 at 3:18 pm #

    Thanks for sharing and your bravery. Like you I was diagnosed with stage 4 endo about 15 years ago as well and in March 2008 I had my last surgery; where my fallopian tubes were removed. Therefore, I my only hope for a family one day is thru IVF or adoption both rather costly so I have no idea what the future holds with regards to having a family one day. Due to lots of prayers I am in a good place of acceptance and focusing on what I do have and being in a continuous state of gratitude. I have made a lot of changes over the years which has helped a great deal so I am not in constant pain. The one thing I would like to change is to stopping the birth control pills I take for suppressive therapy, just haven’t reached to that place yet, hopefully soon.
    Thanks again for sharing and tons of informative available.

    • Melissa April 4, 2011 at 12:43 pm #

      It is my pleasure Winifred. It is good to see you are in a place of acceptance and focus on gratitude. That can be really hard for many of us when we have been suffering for so long.
      You will get there, when you are ready! At least you know where to look :)

  17. Kristin Kiley March 31, 2011 at 9:36 am #

    Hi Melissa, I think you have a great blog and many interesting topics are discussed. I also think the emotional support for women is powerful. I hope I could ask you some questions through Skype. Thanks, Kristin~

    • Melissa April 1, 2011 at 6:30 pm #

      Thanks Kristin and I am glad the support is powerful! I will contact you via email and we can set-up a time – though it can be tricky with the time differences!

  18. Jenny March 24, 2011 at 2:47 pm #

    I personally have had problems with my period since I was 13, but back then it was just bleeding heavily and non-stop for 3 months, I was put on birth control and many natural supplements, and thankfully I was fine after some time. At 21, I found starting having sharp pains on my side, and as the months kept passing by I just felt myself getting worse. I went in for an ultrasound and found a cyst that was 4 cm. They told me to wait a while and see if it went away, but I kept being in pain and couldnt take it anymore and after 3 months, asked to have surgery and afterward was told I had Stage III endometriosis, the cyst was an endometrioma and also had adhesions on my colon. After the surgery, I felt better a few weeks, then was put on birth control, but it was making me sick and stopping it was a nightmare–ended with more/new pain! Like you, I thought the surgery would end my misery and I could live my life, but that was not the case, it was just the beginning….I’m currently on birth control now (different one), but I feel I need a lifestyle change to heal from this, not these pills. It’s a very difficult, and painful disease to deal with and I want to make myself better and live my life the way its MEANT to be—endo/pain free! Thank you so much for sharing your story and your weekly healing tips! I’m going to try to change my diet and keep a journal of my symptoms, also I’ve incorporated yoga and meditation, slowly but surely, I will heal from this. Thank you once again, it’s great to hear other stories and know healing is possible!

    • Melissa March 24, 2011 at 6:52 pm #

      Thanks for sharing Jenny! I am glad you are going to focus on healing naturally! :) It is worth it! Trust me on that one :)

  19. Josefina March 22, 2011 at 11:27 am #

    I just wanted to thank you for your website. I do find that it is nice to be able to read that I am not completely alone in this. I had laparascopy four and a half years ago, after ending up in the ER due to the excruciating pain. I had always had extremely painful periods to which I had always been told that it was “normal” and I was probably “exagerating” and that “all women have pain in thier days” but when I found myself screaming in pain I ended thinking it was probably appendicitis. Well after the laparoscopy my life changed. I could not believe the constant pain I had been in prior to the surgery, I was on top of the world. In order to “reduce the chances of re-growth” I was put on the birth control pill on an on-going cycle (no periods). Slowly I did notice lower back pain and pain during intercourse return, but made nothing of it. Abouth eight months ago I stopped taking the pill -my husband and I want children. Well… as I write this I have a hot water bottle on my belly and spent a weekend in which I could barely sit up, let alone walk, laugh or anything like that, all the pain is here again. I have decided to start the diet I have read about online over the weekend. I can definitely give up anything to get over this pain.
    Thank you for sharing and making me feel a little less alone!

    • Melissa March 22, 2011 at 6:50 pm #

      Hi Josefina and thanks for sharing your story. Your journey sounds very similar to mine and it is nice to be able be there for each other!
      Try getting onto some Evening Primrose Oil just in the meantime until you figure out all the dietary changes. They take a while to get used to and do adjust to them slowly so your body can catch up! All the best, Melissa

  20. Francesca March 19, 2011 at 8:39 pm #

    My mother is diagnosed with Adenomyosis with right ovarian cyst. She refused to go for surgery so im trying to look for another option.
    Thank you for sharing your story. I will ask my mum to try out the ginger+honey+turmeric drink. I know you mentioned that it works for Endometriosis but do you think it will work for Adenomyosis?
    Thank you again..

    • Melissa March 21, 2011 at 7:34 pm #

      Hi Francesca and thanks for your question. I am unfortunately not that familiar with Adenomyosis but from reading up on it, it is found in the uterus wall rather than individual cells within the uterus itself. It can have no symptoms or similar symptoms to endo and similar treatments are prescribed. Apparently having a hysterectomy does actually cure it???
      I would say that since it is all related to our hormones, the information found on here would pertain to Adenomyosis too. I can’t see any harm in trying turmeric – it is like wonder powder! :) Also, try my good old faithful – Maca Powder. Hope that helps :)

  21. sharon March 11, 2011 at 3:51 pm #

    Hi, I have stage 4 endo (I think the stages should be different) and have had it as long as I can remeber I am now 37.I have tryed many things.Saddly I have went though 3 very agressive treatment of Lupron including injecting myself daily..2 blood disorders are now showing up, and they are thinking I am going though oviarn failure.Has anyone else out there came up with blood disorders.Oh I have endo all the way up to my diaphragm.Yep top to bottom I am just waiting for it to show up on my leg or something lo l(it can go there).I am in the us but if anyone can help me please let me know, the pain is getting unbarable.I have tried many things(quite a few listed here) but nothing seem to help much.I also am getting the autoimmune disorders that follow.Thank you all who are trying to help each other :)

    • Melissa March 12, 2011 at 2:55 pm #

      Hi Sharon. It hurts to read your story so I can imagine the pain must be even worse. Perhaps you should try a Traditional Chinese Doctor as an alternative. They work out specifics within your body and put you on a distinctive course for at least 6months. The healing techniques usually only work in combination but it is knowing what combination and what strength that varies between all of us. A natural practitioner will be able to work with your on a one on one basis to help you. All the best,
      Melissa

    • sharon March 14, 2011 at 11:43 am #

      I would love to try that option but the area I live in do not have traditional chinese Dr’s around.I have tryied some people who are trying to learn it but do not know much about it.Maybe I can move sometime to a better area for this…I read about the pill and the problems with it but I wonder if you only have options like that or surgery what do you try to do? Keep up the good work!

    • Melissa March 14, 2011 at 5:29 pm #

      Hi Sharon. It is sad that there aren’t any Traditional Chinese Doctors where you live. Are there any acupuncturists? They often stock herbs that can be beneficial. Healing yourself naturally can be as simple as changing your diet, incorporating some super foods and including more exercise into your lifestyle. There are many things you can do on your own to feel better. Naturopaths and Chinese Doctors just give us additional advice and herbs to get us there easier.

    • kecia March 31, 2011 at 10:42 am #

      Hi , I have had Endo. since I was 21 and now I am 45. I have had three laproscopes and a misscarriage. My last surgery was about 9 years ago followed by Lupron and other meds to keep it under control. About two years ago I started feeling like it was coming back and fearful of another surgery I started researching natural supplements. I found DIM and started taking it. It was like night and day. It balanced my hormones and lightened my periods with zero clotting. I ran out this month and boy it was back full force.So DIM makes a big difference. Here is the link to one of the best DIM supplements even studied by Georgetown Medical University. http://www.bioresponse.com/BioResponse-DIM-150.asp
      I hope this helps.
      P.S. I always wondered why I had digestion problems during my periods. It felt like I had an ulcer. Even during ovulation. Thanks for this site its very helpful..

    • Melissa March 31, 2011 at 6:42 pm #

      Hi Kecia! That is so funny. I had just heard about this from a colleague of mine yesterday! I am glad to get positive feedback on it!
      I am glad you like the site and incredibly happy you are finding natural solutions that are helping :)

    • sharon April 1, 2011 at 6:57 am #

      Is there a way to talk about this?I am really having a bunch of problems.I am going to look that up.I have hashimotos thyroidist too plus blood disorders, I really need help the endo assocation won’t help me much here in the states, this is the only place I have found help!I want to donate to them but why donate if you won’t even help?I know that sounds mean but I am so sick I cannot work anymore, money is tight.thank you all for your help :)

    • Melissa April 1, 2011 at 6:25 pm #

      Hi Sharon,
      Kecia will hopefully reply to you soon :) I have asked her to respond to you here in case you didn’t want your email given out. You can order the DM through this website: My Natural Fertility. Unfortunately I don’t feel experienced with your other conditions but perhaps Kecia can help :)

  22. Diane March 9, 2011 at 9:04 pm #

    Please, every day, when you wake up, thank God for your husband and/or others who support you. I was diagnosed over four years ago (probably had suffered longer, but was on the pill, which had helped, but had to go off because of an 18-month migraine). I moved from San Francisco to Denver to be closer to my sister, who is my only family – my mother is dying from MS in a nursing home back East. She is only 63, and I am responsible for making decisions about her care. I have a brother, but we haven’t spoken in 5 years, as he does not agree with our decisions to use our family money to take care of our mother, since he feels it is his “inheritance”.

    Unfortunately, my sister, who is married, did not feel like dealing with a “sick” person, so I moved back to San Francisco. I had been offered a job, but it fell through, so now I am on the brink of homelessness, I have no family, no support, and cannot afford treatment (I was seeing a great physical therapist, a urologist, and doing yoga) let alone be able to afford to eat the expensive types of foods you describe. I don’t eat junk food, but I struggle to pay for my health insurance, so being able to afford anything extra is out of the question. And I know if my health insurance lapses, because of the crazy laws of the States, it would be almost impossible for me to get re-insured. But it costs USD$540 a month. And I still have a $2,000 annual deductible, so I still can’t afford to go to the doctor. Of course it doesn’t cover any sort of alternative care. Were it not for the support of my dog, I don’t know how I could go on.

    So when you’re feeling sorry for yourself, turn and look at your husband. And know there’s at least one person in this world going through this journey completely alone.

    • Melissa March 12, 2011 at 2:50 pm #

      Hi Diane,
      I am sorry to hear of your struggles. I think we are all tested in ways that we can overcome. It is a way to get stronger and grow and become a better person. You must already be a caring person to consider your mother in your life decisions. You have some amazing qualities inside of you that you can share and will share very soon! Divert your focus on helping others and you will find a much clearer and easier path for yourself. I hope this helps. All the best.

  23. Kristin Kiley March 5, 2011 at 6:31 am #

    Hi I am currently doing research on Endo and how social networking brings women together. Would you be interested in taking my survey? It is for my master’s class on Communication Research. It would greatly be appreciated. Thanks, Kristin
    If you wish to take it please click the link below!! Thanks again!

    http://www.zoomerang.com/Survey/WEB22BYY6JGD75/

    • Melissa March 7, 2011 at 4:26 pm #

      Thanks for sharing Kristin and I hope the information helps! Any of the other girls are more than welcome to fill in the survey too :)

  24. Dearne January 31, 2011 at 12:45 am #

    Hello – I’m so glad I found you!!! Like most I found it difficult to find a doctor that could actually help. I spent 10 years struggling to find out what was going on. A partial hysterectomy was suggested as the gyno believed it “may” help my bowel issues. I finally found a doctor that diagnosed endo of the bowel. I manage the best I can and with my wonderful Naturopath I am now almost pain free at period time. I am taking Chaste tree, fish oil and a women’s multi. I also take slippery elm daily in cold cammomile tea. I do drink far too much alcohol though!! Sorry I’m going “grog free in February” (thank heavens it’s a short month!!) I’ll keep a diary and see what improvements I notice. Both my mum and her mum had bowel problems. My mum had her apendix removed because she according to her doctor “stripped her bowel by taking too much all bran”. I now wonder if it was endo too. My dear Mum passed away at 56 from a rare leukemia in 2000, so I can’t ask her for any details. Wish me luck with my Grog Free Quest :0)

    • Melissa January 31, 2011 at 11:08 am #

      Hi Dearne,
      I am glad you found me too! :) I am glad you decided to go against your doctors recommendation for a hysterectomy and gone down the path of natural healing. Slippery Elm is great for your digestion! Good luck with going “grog free in February”! You should notice an instant improvement with your tiredness. I feel terribly tired when I drink! Often Endo is passed on through the family tree! I only realised recently how my family issues are all related back to the liver! I am sorry to hear of your mom! Hopefully you can succeed in your healing and be Grog Free for even longer than Feb! All the best sweetie!

  25. Melissa January 24, 2011 at 9:11 pm #

    Hi Stephanie,
    I am glad I could give you hope. I sometimes wonder if appendicitis and gallbladder issues are related. I know they both also relate to the liver and ultimately the immune system, so perhaps there is some correlation?
    Interesting theory though…

  26. Patricia January 17, 2011 at 9:14 pm #

    Im feeling better reading about all this; same situation that i having for a lot of years…. I would like to have somebody close to me that understand the pain,stress, depresion all of Endo things, really almost nobody understand. Fortunately i have a very good husband that understand but is not good that he always listend my sufering i think some day he wil tired about it. I would like to speak with somebody for share our sadness. I hate Endo!!! I’d wish to know about all of this recomendations long time ago, now probably is to late for me. Im still trying to concieve, still taking herbals and
    medicine. iM Taking Calendula, Omega 3, I do YOga and i’ll try Acunputure…could you
    please tell me what kind of teas??? I read just about Raspberry leads, but …what else, Im very desperate, this Endo make me feel crazy very often!

    • Melissa January 18, 2011 at 3:26 pm #

      Hi Patricia,
      Thank you for sharing your pain and frustration! Lucky that you have a husband that understands what you are going through! It can feel never ending! I would strongly recommend seeing a Traditional Chinese Doctor, Naturopath or Homeopath to help you. They need to put you on a holistic healing plan. It is a combination of things that need to come together. I hope you have signed up to the video course as this will help you heaps! There are a number of teas to try but they will only help you with pain and not heal the cause. It does require some life changes but check out the video course and that will help you work out what you can do moving forward! :) All the best and enjoy trying to have a baby!

  27. Debbie January 17, 2011 at 8:59 am #

    Thanks for sharing your story. I’ve just had a laparoscopy where some endo was lasered out. I’m 37 and only found out a month ago that I have it. (Because my husband and I want children). It’s interesting that most people with endo seem to suffer from painful periods. I never have and only now have felt slight pain during sex or periods. I’m sure I’ve had it for at least 6 years. Like you, I’ve always had a feeling that there was something wrong with my “girlie bits”! Now that it’s a better known disease, suffering from the symptoms is better than not because at least you know something is wrong. I’m only finding this out now when I want to have kids and I’m quite old for that! (Perhaps if I’d known earlier, I’d have planned to have children sooner?) I live in South Africa like you used to and I’m seeing a naturopath who practices Chinese medicine. He is helping me get my body back into balance. I certainly don’t want to go through another laparoscopy! I’m going to follow your advice and watch my diet. Thank you so much for making a mystery condition less of a mystery. It’s easier to beat a disease that we understand.

    From
    Debbie

    • Melissa January 18, 2011 at 3:19 pm #

      Dear Debbie,
      Thank you for sharing your story. It is amazing how we somehow know what is wrong with us! Where about in SA are you? I am glad I could help! I know it is somehow nasty that you didn’t know but at least you didn’t spend your teens and 20′s in pain either! You will find your balance and be able to have kids – many women have even with endo! Glad you have found a naturopath and one who practices Chinese Medicine. Hope it all goes well and remember I am always here – even if I live on the other side of the world!

  28. Laura Watson January 7, 2011 at 7:13 am #

    I have just read your story and I wanted to thank you for making me feel I am not the only person in the world with this horrible disease and with the belief that the natural way is the only way! I am 23 years old and have just found out I have endo and all the doctors have told me is that “I should go on the pill to help it”. I really dont want to but all my family think i am being silly by not listening to the doctor. Also I have completely changed me diet and have eliminated diary, meats etc however again, rather than praise my family think “I am being over the top” and that I am not helping myself at all. I have also throw out all of my make up as I am aware that much of it had “parabens in it” which are making my symptoms worse.

    Reading this has given me hope! thank you! It is comforting to know someone experiences the same pain as me, as no one around me understand what it is like and because i try to pretend its not that bad I am told “its all in your head”. I cant thank you enough!

    kind regards
    Laura

    • Melissa January 7, 2011 at 8:10 am #

      Hi Laura,
      I am so happy you have managed to find my site and that it will hopefully give you the courage to go with what you know inside of you is the right way forward – naturall all the way baby! Trust me, I have gone down all the wrong paths and only really started to feel better once I went natural! Eventhough it is hard, we sometimes have to go against what others say and trust in ourselves!
      This is a very lonely condition sometimes because people can’t really relate to the pain. I describe it like having a really bad case of diarrhea exept you can’t get anything out! ….. well hey it describes it well! I did a video about how it really feels on You Tube. Check it out and maybe show your family if you want to.
      I am so glad to give you hope and encouragement! It will get better! You just have to hang in there and keep going! You are on the right track!
      Thank you too Laura for your wonderful comment and kind words! It makes me feel good too :)
      Melissa

  29. Melissa January 7, 2011 at 5:07 am #

    Hi Melissa,
    I came across a link to your site by way of a chat forum and find your story to be very interesting. I was officially diagnosed with endo about 6 years ago, but have probably had it much longer. First, I want to say that it is great to see someone promoting health instead of meds. I was wondering if you’ve ever heard of Gerson therapy? It has help lots of people with many different diseases. I just recently learned of his work myself and I’m getting ready to start this healthy adventure. Dr Gerson believes that the body has the power to heal itself given that you put the right things in it. It’s a vegan diet with a lot of fresh natural juices. (13 8oz glasses a day)
    I too want to cure myself of endometriosis and not miss anymore life because of pain and or symptoms.
    Thank you so much for sharing your story. It’s people like you that make difference.

    Best Wishes,
    Melissa

    • Melissa January 7, 2011 at 8:01 am #

      Hi Melissa,
      Thank you so much for sharing this valuable information! I hadn’t heard of Gerson Therapy but will certainly look into it further to help girls who have read your comment. It sounds great already – always love suggestions for fresh natural juices! :) Glad to have you on board to curing yourself! It is great when others believe and want to make change with me! Here’s to natural all the way!
      All the best,
      Melissa no.2

  30. jyoti mukherjee January 3, 2011 at 9:58 pm #

    Hi,
    Thank you so much for speedy reply.You mention homeopath and naturopath so is there any dr you would recommend who is specialized with endo.I am from Bangalore, India.I don’t know if you can help me with this info.

    Melissa i am really very thankful to you for understanding my anxiety and fear.. As you said one can acheive anything if one believe in it. I wish i can be so optimistic but i will try to be..Thank you very much .I think we all appreciate the help you extended to all of us. Your encouraging and positive words reduces our pain.

    god bless you angel..
    jyotee

    • Melissa January 5, 2011 at 9:59 am #

      Hi Jyotee,
      It is my pleasure and I am glad to be able to make a difference to girls all around the world. I live in New Zealand so unfortunatley my naturopath might be a little far for you to travel to! :)
      Look for someone you feel comfortable with and feel you can trust.
      All the best,

      Melissa

  31. Carolyn January 2, 2011 at 11:37 am #

    Thanks for blogging on natural remedies, a friend of mine keeps referring me to more holistic doctors. My Endo has been in swing for seven years now, I found out when I was a senior in high school. I also thought I had found the love of my life, but I did not wait to have sex. It started as just chronic bladder infections, which morphed into constant pelvic pain. They attempted putting me on the pill a couple of times, with no avail. All the birth control did was force me into deep depressions and I would just cry for days. I did research and when I found the symptoms of Endo, I knew then that it had to be the answer. However, at 18 the lap-scope seemed very intimidating. After my first obgyn performed the surgery, she came back with the results that I was fine, no Endo. I went to urologists after that who put me through horrible testing, and they did find I had kidney stones, after the removal the pain did ease… until I had my period again. I definitely had moments of giving up all hope at living pain free, but my mom wouldn’t hear of it, so we continued to research doctors. We found a specialist in Endometriosis, who was able to look at the photos of my first Lap-scope and said with no hesitation that I had the disease. After getting over my rage at the misdiagnosis, I went in for my second Lap and he removed the lesions and tissues. He had me on Lupron which tricks my body into menopause, like you, I could only take it for six months due to risk of Osteoporosis. Lupron never really gave any relief to the pain, but it got rid of the nasty periods. Now, I have had about 6 periods since the treatment, the next always worse than the last. I feel now my options are limited to dealing with the periods and the pain and regularly have surgeries, or getting a hysterectomy. I have also heard from doctors that pregnancy helps, but I’m only 21! For now I just take the pain day by day.

    • Melissa January 3, 2011 at 11:28 am #

      Hi Carolyn,
      I am sorry to hear of your struggles with endless pain and that you have put your choices down to having a baby or a hysterectomy- especially since you are still so young! Perhaps you should try a Traditional Chinese Doctor or Homeopath. Have a read through Carolyn’s story from Endo-Resolved. This should give you heaps of encouragement to keep searching for a way to healing. Unfortunately, neither choices of having a baby or a hysterectomy are guaranteed methods of healing. When your body has regained it’s natural balance, then it can truly heal itself. Hope you find a better path than I chose at 21! :)

  32. Jyoti muherjee November 26, 2010 at 5:30 am #

    hi,
    I am 35 yrs and was diagnosed with endo few months bck when sonography revealed ovarian cyst. Ovarian cyst is removed lapro in month of april 2010 and for month of may and june 2010 i was on lupride depo.. from july post my periods we started planning and trying for child. though the drs advised IVF straight away.. we refused to go for IVF…they said i have moderate to severe endo.. i am trying hard but my question to u is whther i should go in for IIVF now or should i try naturally…what are my chances of conceiving naturally? i am worried and feel depress each time i get my period.. Your site came as an angel spreading the message of help and compassion…
    thank you for such wonderful effort…

    • Melissa November 27, 2010 at 1:07 pm #

      Hi Jyoti,
      I am glad I could be your angel :) Your body will be ready to conceive soon! Believe you can and you can achieve anything :)
      It is my pleasure! Don’t stop trying!

  33. Jyoti muherjee November 26, 2010 at 5:21 am #

    hi,
    I was diagnosed with endo few months bck when sonography revealed ovarian cyst. Ovarian cyst is removed in month of april 2010 and for may and june 2010 i was on lupride depo.. from july post my periods we started planning and trying for child. though the drs advised IVF straight away.. we refused to go for IVF…they said i have moderate to severe endo.. i am trying hard but my question to u is whther i should go in for IIVFor should i try naturally…what are my chances of conceiving naturally…

    • Melissa November 27, 2010 at 1:06 pm #

      Hi Jyoti,
      I think you know in yourself that IVF isn’t really a good idea. Try naturally with natural aids to help you conceive – Raspberry Leaf Tea is great – and see how you go for a few months. If you are still not successful in getting a little one, try going to a homeopath or naturopath instead. If your body is not conceiving, chances are it is not ready to carry a child. Your body needs to be healed before it can conceive. Focus on a good diet and boosting your liver and looking after yourself and giving your body the best nutrients. All my best wishes and enjoy trying for your baby! :)

  34. Lina Arango October 24, 2010 at 9:29 am #

    Hi Melissa, your name on your previous post, endoangel is perfect, it truly is a relief to have found your blog. This is exactly the type of help that I'm looking for.
    I just went to the gyn last week, that a friend recommended as we were trying to get pregnant this year, and no luck.
    My symptoms were indicating that something was wrong. I have brown spots for about 10 days until my period comes. I have had pelvic pain for at least one year (I originally thought that something was wrong with my lower back) and lately I'm getting horrible cramps with my period. An ultrasound indicated that I had something going on the left part of my pelvis and close to the left ovary…. doctor said "I want you to read about something called endometriosis"… he gave an article where all of the different options to treat them were described, however, it didn't say anything about what causes it, or how it can be naturally treated, or even prevented. .. and here I'm… very very glad to have found your blog and all of your recommendations about food as it is said "we are what we eat"…. I will follow your blog very close and look forward to starting put in practice all of your recommendations.
    From the bottom of my heart: THANK YOU SO MUCH FOR YOUR TIME ON THIS! I really helps knowing that there are people who can understand your concerns.

  35. nazy October 22, 2010 at 5:35 pm #

    Hi Dear,
    Your blog is amazing. Thanks for this nice effort. I'm 30 years old, recently I've found that I have endometriosis after I referd to a Gyno for fertility problem. It's like 5 months I'm trying to concive and from the start point I feel very bad nausea that goes with my cycle every months. I always have had very smooth period like Three days light bleeding and almost no pain, or may be some normal cramping. After an internal ultrasound my docter said I have endometriosis and the right ovary is not in a good condition.
    But still I feel no pain!
    He asked me to continue trying to concive at least for two months and then afterwards he will see if it didn't happen what we are going to start with to cure.

    I try to do not eat meat and milk. :( I'm a fan of meat though.
    and I will go and by what you suggest to eat :)

    I don't want to go for surgury cause I believe it can come back and it can make more adhisions. I don't like hormonal therapy too.

    I try to be optimistic. Hope I could concive soon.

    Thanks dear

    Nazy

    • endoangel October 23, 2010 at 4:31 pm #

      Hi Nazy,

      Thank you for the compliment! You might be a lucky girl and have few symptoms from Endometriosis! That is great! You could try Traditional Chinese Medicine or Homeopathy to find a natural way of healing. Even just including some things like Raspberry Leaf Tea and Maca could help you conceive. Maca puts our hormones back on track and would help with the nausea. It will also reduce the Endometriosis and prevent it from spreading further. Also, eat a minimum of 3 Brazil nuts everyday. They contain Selenium which is great for our immune system but has been proven to slow the growth of Endometriosis in Cows and hey, what harm can 3 nuts do? If you can't resist meat, just make sure it is organic cos the other stuff can contain Dioxin which is a toxin on the body.

      Good luck with falling pregnant! I am sure you will or at least enjoy trying!

  36. lauren October 12, 2010 at 6:27 am #

    Hey there!

    I was just wondering, when you suggest not eating meat, does chicken and fish count too?

    Thanks!

    • endoangel October 12, 2010 at 7:01 pm #

      Chicken and fish aren\’t too bad. It depends on where it comes from too! If you are eating chicken and fish, make sure it is organic or from fresh sources. Chickens get injected with nasty stuff to get them to grow quicker and these include nasty hormones which is possibly the last thing we want to add to our body! :)
      I only have them about once or twice a week.

  37. philippa October 9, 2010 at 7:54 am #

    good luck, robin….and i thought my 3-4am hrs were upsetting me alone.. so sorry you've had it so tough, be well x

  38. Robin Worthington September 8, 2010 at 1:26 am #

    Hello, yes it is hard finding someone who does not have endo to understand what you are going through on a daily basis. I have a close group of friends and a partner who happens to be female, she does not have endo but I have stage 4. She really tries to understand but the pain I go through is out of her realm. I was diagnosed at 25 but my dr.s say I have been suffering for the past 20 years. I'm 30 now. I started at the age of 10 and they were never right. I have lost all female organs and a appendix as well. The endo is still in full swing, I sit up till 3-4am in the morning trying to understand what I can do to help others who suffer from this disease, as well as solutions to the pain I have. I had reproductive endo. I have endo in my scar and intestinal endo. So granted I suffer every day. I lost my ovaries in 2009 due to cancer that endo caused. Menopause has reaked havock on my body hot flashes, night sweats, mood swings and I have osteoprosis in my right hip already. The pain gets so bad that I'm bent double, and unable to move. I'm currently on vicodin for pain, and would like a more natural approach, instead of having another surgery next year. So any help would be great.

  39. jackie August 29, 2010 at 3:16 am #

    No one understands this disease… most of my friends never heard of it and they are all off having babies while I'm in dehabilitating pain for no good reason. I am 34 and recently diagnosed. I went off the pill a year ago to try to have a second baby and started having nonstop chronic pelvic pain. This I have to say is one of the hardest things I have ever experienced in my life. Interesting comment earlier about gallblader removal – i also had my gallblader removed years ago.

    Question I have is can you experience non-stop quesiness nausea and breast soreness due to endo?

    my ob/gyn tells me the best solution is to get pregnant to relieve the pain. But I'm not getting pregnant. I wonder if my ob/gyn thinks I'm crazy behind my back because how often i call the office. I can't help it!!!

    • Melissa August 30, 2010 at 8:13 am #

      Hi Jackie,
      The symptoms and pain related to Endo all relate back to our liver. Because our livers don't work as well we are not able to reduce the Oestrogen production in the body. Oestrogen will make you feel nauseous, sore breasts and also all the pain from Endo. We can make the liver work better by what we eat and some little extra's like Dandelion Root and MilkThistle.
      Don't worry. We are all here for you!

  40. Stephanie August 22, 2010 at 4:14 pm #

    I found this info very helpful,I suffer from endo and having bad bout tonight,but you have given me hope! I also wonder if this has any connection,4 yrs ago I had appendcitis and gallbladder removed,right after still continued pain..another lap,endometriosis,so many women I talk to have similar experiences,could it be related? appendix is now to be believed part of immune system.

  41. OlgA August 14, 2010 at 4:35 am #

    HELLO, YOU ARE A BRAVE WOMEN!!! I LIKE YOUR BLOG!! I READ YOUR STORY AND I AM GLAD YOU HAVE SOMEONE TO HELP YOU AND UNDERSTAND YOU AND YOUR HEALTH. I AM MARRIED AND I DON’T HAVE THAT WITH MY HUSBAND. WHAT KEEPS ME GOING IS PRAYER AND GOD AND TRUST IN HIM. I ALSO HAVE SEVER ENDO. I PRAY FOR RELIEF AND PATIENCE.
    I WILL READ YOUR BLOG…. KEEP POSTING ;)

    • Melissa August 14, 2010 at 10:02 am #

      Hi Olga,
      Thank you for your encouragement! I am sorry to hear your husband doesn’t understand Endo. It is not an easy one to explain and gain understanding for. At least you can find solice in god and hopefully my blog. There are many of us out there with Endo and we can all help eachother! Just keep healing yourself everyday and you will find relief. All the best and good health, Melissa

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